I had just completed the New Jersey Acoustic Neuroma Survey! It asked to described my experiences with Acoustic Neuroma treatments, which amount to three in total and all involved microsurgery.
I wish things the first time around were done differently. If only I was informed of all treatment options, if only I was asked to give informed consent. If only… if only… I would likely not be suffering from facial palsy and dry eyes today. I would have saved myself from emotional damages and some money from buying artificial tears. But emotions are of no value in this country. You can’t take the government to court for that or anything else.
So I must learn to look at and appreciate positive aspects. At least, they terminated my surgery after ten hours and did not entirely severe my facial nerve. Maybe they wanted to go home (hehe) so the tumor was only half removed and my facial nerve remained intact, which helps my eyelids open and close. Pei Lee was not so lucky. They snipped hers off so now her right eyelid is close at all times.
At least I can still flicker those eyelash extensions and move my right cheek a little.
The following year, Dr. Friedman and his team removed the residuals of that tumor and avoided the facial nerve, so no further damages occurred. My self-esteem after the surgery went downhill and then improved when I sought treatment at House Clinic.
In 2006, an Acoustic Neuroma on the left hemisphere was again removed at House Clinic. The facial nerve on this side was untouched.
So that was me and my past self. But many people still don’t understand the cost of not being informed about their own health condition and treatments until they suffer the consequences.