If you're interested to know how I was prior to being diagnosed with NF, read my old blog here.
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A friend of mine bought me The Secret Speech in large print, which is a sequel to Child 44 by Tom Rob Smith. Having read these two books, I feel as though I’ve lived in Soviet Russia. Child 44 is … Continue reading
I’ve known Rebecca Dufek for as long as I have been diagnosed with NF2. An endurance athlete, Rebecca runs marathons to raise funds for research to find a cure for her illness. Her latest fundraising feat involved climbing up the … Continue reading
I often remember my dad with nostalgia. This is different from when Aunt Ivy passed away. I was in grief when she left us. But my dad’s life and demise is more surreal to me. My dad’s mere existence shaped … Continue reading
The NIH clinical research program will not be accepting Pei Lee. Yesterday, they informed her by e-mail in English which she asked a friend to translate. Pei Lee was disheartened and cried. They also informed me seperately. But they wouldn’t … Continue reading
Today is November 16th 2010, exactly one month after dad passed away. He died of lung and heart failure at 10pm on October 16th 2010. His 2-day Wake was held on October 17th and 18th, followed by his cremation on … Continue reading
I gave another 40-minute talk to Taylor’s Canadian Pre-U students last Saturday. Thanks to Lecturer Collin Boyd Shafer and his class for inviting! Sheng Yeong who lives in Bukit Jalil went for a haircut that morning before picking me and … Continue reading
A friend of mine has been very concerned about eating in Bethesda even before she gets accepted into the NF2 clinical study program. She swore to eat vegetarian out of her religious belief and may have some strict requirement as … Continue reading