If you're interested to know how I was prior to being diagnosed with NF, read my old blog here.
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Monthly Archives: December 2011
Last three Ambigram XXL in brown color
I found three pieces of Ambigram t-shirts in XXL size and in brown color today. I thought that I didn’t have them anymore until these three pieces surfaced. Would anyone like to have one of them? They are the last … Continue reading
Posted in Product Sales
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For a helpful doctor
A very supportive and helpful anesthetic medical officer of a local public hospital wants to find ways of helping me apart from helping to sell my books and t-shirts on her end. To help her better understand my medical history … Continue reading
Posted in Health
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If you are an NF2 doctor, I need your help
My surgeons at the House Clinic in Los Angeles and the National Institute of Neurological Disorder and Stroke in Maryland have not come to a conclusion as to what is causing the pressure I feel in my brain. As different … Continue reading
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The ambiguity continues
On Friday evening, my CT scans were zipped and sent to the surgeons via a free online file-sharing service. They reviewed it but did not see any tumors in my third ventricle like the Malaysian surgeon I saw said there … Continue reading
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My ebook is available on Amazon
Kia Kaha Press has published a digital version of my book, “I’m not sick, just a bit unwell – Life with Neurofibromatosis” which is available for download internationally from Amazon.com. To help me raise funds, Kia Kaha Press will be … Continue reading
Posted in Book Project
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The likely culprits – Ventricular tumors
I went to see the neurosurgeon I met on Monday again to get clarification from him this evening. It turned out that I misunderstood him on Monday. What he meant was there are two tumors at my brain’s posterior fossa … Continue reading
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T-shirt and book availability for January 2012 surgery
Someone who wants to help me raise funds asked how many t-shirts and books I still have. So here is the list. You may help by gathering orders among your friends and purchase from me in a bulk too. Estimated … Continue reading
Posted in Product Sales
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