Recently, a parent of an NF2 patient drew my attention to a blog post with my story together with a product called Prolife Energy. I wish to clearly state that I have never used this product. Someone invited my mother and I to a place to try it one day in 2011. When someone at this place explained how it works to me, I declined immediately because I was worried that the energy it emitted would damage my Auditory Brain stem Implant in the brain.
I was surprised to see they used my story and my condition to promote the product without my knowledge even when I declined using it. I am saddened that such a thing happened. I hope such will not happen again. When you see articles about Prolife Energy and me, please take note I do not endorse it.