My profile

Full name: Foong Ming Niang, Yvonne
Birth Date: June 1986
Hometown: Petaling Jaya, Selangor, Malaysia
Highest Education: BSc Psychology
Job: Director, Works of Gratitude

Schools Attended with Merit:

1. Upper Iowa University, Extended University Program
2. Segi College Subang Jaya ( Spring 2007 – Summer 2009)
3. Life College, (January – August 2006)
4. MSC International College. (January – June 2004)
5. Sekolah Menengah Kebangsaan Subang Jaya
6. Sekolah Rendah Sri Subang Jaya

Work Experiences:

1. First Published Book, ‘I’m not sick, just a bit unwell’
2. Short Story Contribution to Sherry Cochran’s Late Deafened Book.
3 Freelance Columnist for The Malay Mail. (May – June ’08)
4. Freelance Columnist for YellowPost (Sept ’06 – May ’08)
5. Freelance contributor to various newspapers and magazines.
6. Contributed short stories to Book Project 2 & Write Out Loud by Karen-Ann Theseira.
7. Full-Time Teacher at LCL SmartLearn Preschool. (Dec ’04 – February ’05)

Voluntary Work:

1. Co-founder of Counseling and Psychology in Malaysia.
2. Editorial contributions for Eden Handicap Service Center.
3. Occasional assistance to help individuals with NF raise funds for medical treatments.

Academic Awards:

1. Life College Full Scholarship for Diploma-level study.
2. Segi College FULL Scholarship for Degree-level study.

Other Awards:

1. F&N Outdo-Yourself-Award 2010
2. Her World, ‘Young Achiever 2008′ award.
3. AYA Dream Malaysia, ‘Most Outstanding Youth of the Year Award.

Past Extra Co-Curricular Activities.

1. Figure Skating ‘SkateAsia 2000′ (with merit)
2. Choir (with merit)
3. Karate: Goshin-Ryu. Brown 4.
4 National Level Web Design Competition (with merit)
5. MSSS State Level Squash Tournament. (with merit)
6. Classical Ballet, The Royal School of Dancing, Grade 6.

Hobbies & Interests:

Meditation, Reading, Writing, Sketching, Crafting, Humanitarian Activities,

Member of:

His Sanctuary of Glory Global Ministries

Other Non-Academic Achievements:

1. Raised USD 58,600 for surgery by selling custom designed Heart4Hope t-shirts. The funds were used to pay for surgery to remove a brain tumor and purchase the Auditory Brainstem Implant – the only device that could help me with hearing rehabilitation. This has made me the first A.B.I. user in Malaysia.


Health Facts

If this is your first time reading my blog, it’s not surprising to find my medical history a mouthful. In fact, some long-time friends and readers still do not wholly understand my condition.

To make things easier for everyone, here is a list of my medical history and diagnosis.

Diagnosis
1. Neurofibromatosis Type 2. (July 2002)

Surgeries
1989 – Strabismus eye surgery for Large Combined Hamartoma
August 2002 – Multiple spine tumor removal
April 2003 – Partial Acoustic Neuroma removal – Brain.
September 2004 – Complete Acoustic Neuroma removal – Brain.
October 2006 – Complete Acoustic Neuroma removal. Auditory Brainstem Implant placement- Brain. Jugular Foramen Meningioma debulked.
November 2008 – Decompression of the right optic nerve, Optic Nerve Sheath Meningioma de-bulking.
March 2009 – Gamma Knife radiosurgery treatment of an Optic Nerve Sheath Meningioma.
May 2009 – Surgical removal of an Olfactory Groove Meningioma.
December 2009 – Surgical removal of a Trigone Meningioma at the brain’s Left Lateral Ventricle. The Contralateral Trancallosal Surgical Approach was used successfully.
August 2010 – Fenestration of the left lateral ventricle and implantation of a ventriculo-peritoneal shunt.
October 2011 – Resection of subcutaneous peripheral nerve sheath tumor – right leg.
September 2012 – Resection of scalp tumor.
November 2012 – Resection of multiple Meningioma from the upper thoracic spine.
April 2013 – Resection of a Radial Nerve Schwannoma from my left upper arm.
February 2014 – Resection of a 3cm Schwannoma from my Cervical Spinal Cord at the level of C2-C3.
September 2014 – Resection of a very large Schwannoma from the adductor muscle of my right thigh.

Prognosis
1. Optic Nerve Sheath Meningioma.
2. Under-development of left eyeball and retina, causing small optic nerve.
3. Semi facial palsy.
4. Jugular Foramen Meningioma.
5. Multiple brain tumors.
6. Multiple tumors along cervical, thoracic, and lumbar spine.
7. Multiple peripheral schwannomas.
8. Absence of VIII cranial nerves – the vestibulocochlear nerves.
9. Usage of the Auditory Brainstem Implant to assist hearing.

Doctors involved in my surgical treatments
1. Neurosurgeon Dr. Ashok Asthagiri M. D. (U.S. National Institute of Neurological Disorder and Stroke)
2. Neurosurgeon Dr. Michael Cirivello M. D. (US. NINDS)
3. Neurosurgeon Dr. Gregory P. Lekovic M.D., Ph. D.(House Clinic)
4. Radiation Oncologist Dr. David Huang M. D. (Good Samaritan Hospital)
5. Neurotologist – Dr. Rick A. Friedman MD. PhD. (House Clinic)
6. Neurosurgeon – Dr. Mark Schwartz MD. (House Clinic)
7. Neurosurgeon – Dr. William E. Hitselberger MD. (House Clinic) (past)
8. Neurosurgeon Mr. Johari Siregar Bin Adnan (past)

Hospitals frequently visited
1. General Hospital Kuala Lumpur (past)
2. Assunta Hospital
3. St. Vincent Medical Center, L.A.
4. Tun Hussein Oon Eye Hospital
5. Good Samaritan Hospital L.A.
6. National Institute of Neurological Disorder and Stroke, United States of America.

Physical Limitations
1. Profound deafness.
2. Underdeveloped left optic nerve.
3. Low right visual acuity
4. Right central scotoma
5. Poor balance.
6. Semi facial paralysis.
7. Stiff Right Leg.
8. Slight Back Discomfort.
9. Tinnitus.


6 Comments

  1. Hi Yvonne,

    Understand that you have wide experience on medical situation in Malaysia. I need some advice from you. I am suffering from abscess at back-side and SJMC doctor recommended to carry-out ‘dressing’ and I just follow his instruction for almost 2 months and recently doctor highlighted to me that the wound is healing very slow and suspect got something ‘extra’ inside and recommend me to carry-out surgery.
    To get 2nd opinion, I will visit 1 doctor at UMSC next week.
    Do you have any idea which doctor is good to carry-out this treatment in Klang Valley?

    Appreciate your reply.

    Thank you,

    Vincent.

    • Hi Yvonne:

      I just sent you an email over at the old gmail.com addy (xxxxxfmn@gmail.com) that I have for you with reference to a possible R side ABI. Please contact Dr. Lekovic if you might be interested in that, especially if you are having surgery on a right side vestibular schwannoma. I think your old ABI was on the left, correct?

      Thanks and all the best,
      Steve

  2. Dear Yvonne

    I am Mrs Law. I came to know about you because of my recent visit with my 4 year old’s paediatrician at UMSC, Prof. Thong. I would like join forum/ organisation related to NF in Malaysia.

    Thank you very much.

    Best regards
    Mrs Law

  3. Hi Yvonne, how are you? You have my utmost respect because you had and going through so many obstacles, physically and emotionally, and keep moving on. You are not alone, both you and I are sharing the same illness, NF2. Up to date, I have gone through 3 surgeries, leaving me right side facial palsy, total right side hearing loss and a blur right eye vision. Do write, I would like to hear from you. Megan.

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