If you're interested to know how I was prior to being diagnosed with NF, read my old blog here.
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It’s NF awareness day on 17th May which is coming up in a month’s time. I’m thinking of gathering some friends for a dinner outing wearing fancy dresses. How does that sound? Fancy Dress for NF – WORLD NEUROFIBROMATOSIS AWARENESS … Continue reading
I’d like to keep everyone informed about the developments of my charitable foundation endeavor. The lawyer in our team expressed concern about possible tax implications, so I brought this project to the knowledge of the senior general manager of the … Continue reading
Dear readers, those of you who have been following my blog especially since the end of last year might remember that I was working on setting up a public charitable foundation to aid other Neurofibromatosis patients in Malaysia. That charitable … Continue reading
A long-time reader asked me a question by e-mail after reading my previous post, I am not a good-for-nothing. It is an interesting question that many people asks. I answered her using my story and decided to share it here … Continue reading
When I started raising funds for surgery in December 2005 at the age of 19, there were two common questions that people often asked which left me dumb-struck. “Where are your parents?” and “What about your relatives? Can’t they help?”. … Continue reading
I am back home in Malaysia since Friday afternoon. Good ol’ Elena Tong picked me up from KLIA. You must be surprised that I decided to come back all of a sudden. Eddie in Brea was the friend who helped … Continue reading
Dr. Scott R. Plotkins of the Neurofibromatosis clinic will only be available to see me after April 8th, which means I have to remain in the U.S. until then. Is there anyone reading this and living in or near Los … Continue reading