Published in Seventeen magazine, December 2005
As a child, I had many dreams in mind. I wanted to be an excellent figure skater, graduate from ballet school, and sing in choirs everywhere.
Like any other teenager, my school days were blissful and memorable. Being the only child in my family meant that friends in school were my best companion. I could still remember, the times I spent playing and chit chatting with my classmates when teachers were not around. Those shopping sprees, sleepovers, school activities and silly adventures that we used to partake together. I was eager to attend school, because then, nothing beats the company of my friends.
My teenage bliss was shortlived. At the tender age of 16, I was diagnosed with an incurable illness called Neurofibromatosis Type 2, a rare genetic disorder that causes benign tumors to grow along various nerves including the brain and spine. When my medical condition was being explained by the doctor, I did not feel sad. but heaved a big sigh of relieve.
It was my first year in secondary school when the ringing sounds in my right ear started. I used to enjoy listening to the radio before going to sleep. But soon, I could no longer use earphones in my right ear. In a matter of months, my hearing in that ear deteriorated until it was completely gone and never came back.
Even though my right ear was no longer functioning, I could still carry on with life as usual. My social life, however, was greatly affected. Being an early teen faced with peer pressure, pretty much clueless about society, I found it hard to explain the deafness to people. I did tell my parents, but they dismissed the case and let it as that. There wasn’t much that I could do, except for taking the situation as it was. Each time someone asked me about my hearing deterioration, I didn’t know how to answer and gave all sort of excuses. In the end, I became self-centred and overly concious about what people thought of me.
Soon after, I was forced to quit ballet and figure skating lessons. Not that I wanted to, but my balance was worsening drastically. A quick spin of my body could have landed me in serious headache and dizziness.
School wasn’t easy for me either. I still remember, how painful it was to fall down everyday. Bruised knees and swollen ankles were not uncommon. New injuries were aflicted before old wounds could heal. Concerned teachers and friends kept asking me about my health, but I could only come up with excuses. The little voice in me wanted to cry for help, but who would be there for me, when my own parents did not even care?
And so, my sudden disabilities continued to torment me until I could barely walk at all. It was only then, that my mom sensed the emergency and took me to the hospital. The first MRI scans revealed 3 brain tumors and several more along the spine. I was relieved, because my sudden deafness and poor balance finally had a cause.
Looking back, the past years were similiar to a roller coaster ride. It’s been three years since I was diagnosed, with three major surgeries behind me and another one to come very soon. I’m often asked about how I manage to cope with everything, but do I have a choice? Simply giving up makes no sense to me. Staying helpless and bitter only puts burden on others. Besides, everything happened so quickly, there was simply no time to waste feeling sorry and to consider giving up.
But God is fair to me. In spite of being ill with shattered dreams, I am blessed to have many wonderful friends who accepts me unconditionally. They have provided me with the kind of love and support that many people lack. Elena Tong is truly an angel in my life. She has seen me through thick and thin, and would certainly be there if I ever fall again. Elena did not mind putting up with my worst behavior in times of desperation. She was my walking stick when I couldn’t walk, my ears when I couldn’t hear, and my pillar of support whenever I broke down. My illness took many things away from me, but it can never take Elena away.
All these while, I’ve never thought anything more of myself, than just another ill-stricken teenage girl. At times, I found myself walking along a deserted road with no clear idea which direction to heed. I wanted to strive for something, but what exactly, and how?
I was like a vehicle without an engine, and that’s when Cordy came into my life. Sometime at the beginning of this year, Cordy came across my blog by chance. She was inspired by my story and decided to send me an e-mail as encouragement. Somehow, our friendship blossomed at a remarkable pace, and soon, we became the best of friends as though we’ve known each other for ages. Knowing all that I’ve gone through in my past, Cordy has a certain admiration for me. She knows that I can do much more with my experience. Cordy was like the missing part in my engine. Without a doubt, she urged me to write a book and taught me to have faith in myself. She told me that there’s more in what I can do than I can possibly imagine right now. She was not just a talking parrot without actions. Cordy stuck around, editing my work as I penned down 7 years of physical and mental anguish. Cordy was right about writing being therapeutic. Writing my book was the best decision I ever made.
So now I have a book, but how am I supposed to get it out? God must have heard my plight, because soon, he sent an angel to guide me through publishing. Writing the book was only the beginning, that was followed by months of door knockings, in search for a willing publisher. What I had in hand was a very niche topic that proved to be a risky investment as well. I was determined to get my book out, but the bleak situation was not compromising with my hopes. Until one day, I happened to surf through the website of a local author named John Ling. I’ve never read any action-thrillers in my entire life, but somehow, there was something about his name that eventually landed him on my MSN contact. His name sounded very familiar, as though I’ve known him before, Thanks to the newspaper article that a friend showed me a few months ago. If she hadn’t done that, I wouldn’t have taken the initiative to know John, and I certainly could not be where I am today. Thank goodness because not only did God send me an angel, but a very good friend too. And that package is no other than John Ling.
My firiends came around as though they were preordained, but there’s one person in my life that didn’t come by ordination. That person is my mother, and she’s simply a part of nature. Any misgivings that I once had for her is now in the past. The fact that mother did not give my health immediate attention does not matter anymore, for she has shown me the greatness of maternal love that is simply incomparable. She was the sole person who took care of me when I was bedridden and unable to walk, without a single complain even when things got messy. To me, my mother is the strongest person ever. Without her, my surgeries could have been much more dreadful.
I’ve come a long way since the day my hearing took its toil. Things are a whole lot different now, after years of physical, mental, and emotional tempering. Some people asked if I wished that I never had this illness. I find that question to be tricky because my illness is what caused me to be who I am today. I could have gone no where if I was never put through such hardships so early in life. Without seeing a need to express my sorrows, my flair in writing could not have developed, and I would not have the chance to write for the magazine you’re reading now. Everything happens for a reason, that is only noticable if we take a step back and look at our lives as a whole.